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      FOP EESTI MTÜ

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      This company's branding has already reached 141 peopleand his is followed by 1 Storybook user.The company has not been rated.and there are no comments either.Te

      FOP EESTI MTÜ current status

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      Andmerobot
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      This company's branding has already reached 141 peopleand his is followed by 1 Storybook user.The company has not been rated.and there are no comments either.

      Tegevusaruanne 2023

      Mittetulundusühing FOP Eesti tegutseb aastast 2015.a.

      2023 a. jaanuari kuus toimus juhatuse üldkoosolek.

      Ühing on loodud et toetada ja aidata inimesi, kellel on haigus - FOP (Fibrodysplasia ossificans progressive).

      Tegemist on harvikhaigusega, mida meditsiiniteadus nimetab ka ossifitseeruvaks müosiidiks.

      2023 aastal ei õnnestunud Eestis antud diagnosiga inimesi juurde leida.

      Aasta jooksul saime osaleda mitmes veebiseminaaris. Muud tegevust ei olnud

      Mittetulundusühing FOP Eesti on jätkuvalt tegutsev mittetulundusühing.

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