GAUCHER EESTI MTÜ

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This company's branding has already reached 140 peoplebut no user is tracking his activities.The company has not been rated.and there are no comments either.Teg

GAUCHER EESTI MTÜ current status

This company's branding has already reached 140 peoplebut no user is tracking his activities.The company has not been rated.and there are no comments either.

Tegevusaruanne 2023

MTÜ Gaucher Eesti on asutatud 13.07.2012 aastal. MTÜ Gaucher Eesti on avalikes huvides tegutsev organisatsioon. Ühingu eesmärgiks on toetada tõve patsiente ja nende lähdasi. Tõstatada teadmisi Gaucheri tõve kohta Eestis, jagada kogemusi ja teha koostööd. Toetada ja julgustada teostatavaid uuringuid mis on seotud Gaucheri tõve ja nende patsientidega. MTÜ Gaucher Eestil on kaks juhatse liiget , neist kummalegi 2021 aastal juhatuse liikme tasu ei makstud. Tegevus jätkub aastal 2022

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